CANADIAN EXPERIENCE WITH MAID

 

Published Research

 2024

  1. Adrian C. Byram & Peter B. Reiner (14 Mar 2024): Disparities in public awareness, practitioner availability, and institutional support contribute to differential rates
    of MAiD utilization: a natural experiment comparing California and Canada, Mortality, doi: 10.1080/13576275.2024.2328627
  2. Allin S, Gibson J, Lau S, Li M, Nissim R, Rodin G, Shapiro G Tong E, Zimmermann Camila. 2024 Feb. Perspectives of Canadian health leaders on the relationship between medical assistance in dying and palliative and end-of-life care services: a qualitative study. CMAJ. 2024 Feb. doi: 10.1503/cmaj.231241
  3. Aslam H, BrodeurJ, Links P. Assessing and managing patients with borderline personality disorder requesting medical assistance in dying. 2024 doi: 10.3389/fpsyt.2024.1364621
  4. Astrachan I, Choi W, Kim S, Sinaii N. When medical assistance in dying is not a last resort option: survey of the Canadian public. BMJ Open. 2024 June. doi: 10.1136/bmjopen-2024-087736
  5. Brassoloto J, Manduca-Barone A, Sedgwick M. Rural healthcare professionals’ participation in Medical Assistance in Dying (MAiD): beyond a binary decision. BC Palliative care. 2024 April. doi: 10.1186/s12904-024-01440-4
  6. Braund H, Dalgarno N, Green S, Gubitz G, Hunt K, Li M, Mulder J, Panjwani A, Shapiro G, Sheth M, Stere A, Stevens S. Development of a Canadian Medical Assistance in Dying Curriculum for Healthcare Providers. Sage. 2024. doi:10.1177/23821205241272376
  7. Candlish RC, Creighton S, Pullman D, Elliott AM. Exploring Canadian genetic counselors’ perspectives and experiences with discussing medical assistance in dying (MAiD). J Genet Couns. 2024 Jan 11. doi: 10.1002/jgc4.1843. Epub ahead of print. PMID: 38213115.
  8. Chaudhury P, Dupras-Langlais M, Lavigne MJ, Lavigne S, Martel AC, Weiss M. Organ donation after medical assistance in dying: a descriptive study from 2018 to 2022 in Quebec. 2024 Jan. doi: 10.1503/cmaj.230883
  9. Chu P, Hales S, Nissim, R. “Walk me through the final day”: A thematic analysis study on the family caregiver experience of the Medical Assistance in Dying procedure day. 2024 doi: 10.1177/02692163241248
  10. Close E, Downie J, Jeanneret R, White B, Willmott L. Patients’ and Caregivers’ Suggestions for Improving Assisted Dying Regulation: A Qualitative Study in Australia and Canada. Health Expect. 2024 June. doi: 10.1111/hex.14107
  11. Fruhstorfer C, Kelly M, Spiegel L, Baylis PJ, Dembo J, Wiebe E. Patient experiences with requests for medical assistance in dying: Perspectives of those with complex chronic conditions. Can Fam Physician. 2024 Jan;70(1):41-47. doi: 10.46747/cfp.700141. PMID: 38262757.
  12. Shapiro G, Tong E, Nissim R, Zimmermann C, Allin S, Gibson J, Lau Sharlane, Li M, Rodin G. Perspectives of Canadian health leaders on the relationship between medical assistance in dying and palliative and end-of-life care services: a qualitative study. CMAJ. 2024 Feb. doi: 10.1503/cma.231241.
  13. Teo MTL. Why the irremediability requirement is not sufficient to deny psychiatric euthanasia for patients with treatment-resistant depression. J Med Ethics. 2024 Jan 12:jme-2023-109644. doi: 10.1136/jme-2023-109644. Epub ahead of print. PMID: 38216330.
  14. Weiss M, Dupras-Langlas Mathilde, Lavigne J, Lavigne S, Martel AC, Chaudhury P. Organ donation after medical assistance in dying: a descriptive study from 2018 to 2022 in Quebec. 2024 Jan doi: 10.1503/cmaj.230883.  PMID: 38286494

2023

  1. Abernethy, N. J. (2023). Institutional Conscientious Objection to Medical Assistance in Dying in Canada: A Critical Analysis of the Personnel-Based Arguments. Canadian Journal of Bioethics, 6(2), 43-52.
  2. Bastidas-Bilbao, H., Stergiopoulos, V., van Kesteren, M. R., Stewart, D. E., Cappe, V., Gupta, M., … & Hawke, L. D. (2023). Searching for relief from suffering: A patient-oriented qualitative study on medical assistance in dying for mental illness as the sole underlying medical condition. Social Science & Medicine, 116075.
  3. Brassolotto, J., Manduca-Barone, A., & Sedgwick, M. (2023). Placing MAiD: A qualitative study of medical assistance in dying in rural Alberta. Health & Place, 83, 103073.
  4. Brassolotto, J., Manduca-Barone, A., & Zurbrigg, P. (2023). Medical Assistance in Dying: A Review of Related Canadian News Media Texts. Journal of Medical Humanities, 44(2), 167-186.
  5. Bravo, G., Delli-Colli, N., Dumont, I., Bouthillier, M. E., Rochette, M., & Trottier, L. (2023). Aide médicale à mourir pour les personnes inaptes à consentir à la suite d’un trouble neurocognitif majeur: préoccupations de travailleurs sociaux du Québec. Intervention, (156), 7-22.
  6. Bravo, G., Delli-Colli, N., Dumont, I., Bouthillier, M. E., Rochette, M., & Trottier, L. (2023). Characterizing Canadian Social Workers Willing to Be Involved in Medical Assistance in Dying for Persons Lacking Decisional Capacity. Journal of Gerontological Social Work, 1-16.
  7. Caitlin Lees, Melissa K. Andrew MAiD for geriatric syndromes: Special considerations February 2023 Healthcare management forum / Canadian College of Health Service Executives = Forum gestion des soins de santé / Collège canadien des directeurs de services de santé 36(9):084047042211410 DOI: 10.1177/08404704221141048
  8. Campbell, S., Denburg, A., Moola, F., Carnevale, F. A., & Petch, J. (2023, May). Re-examining medical assistance in dying for mature minors in Canada: Reflections for health leaders. In Healthcare Management Forum (Vol. 36, No. 3, pp. 170-175). Sage CA: Los Angeles, CA: SAGE Publications.
  9. Catherine Perron, Vanessa Finley-Roy. Intégration des personnes atteintes de troubles neurocognitifs dans la recherche sur l’aide médicale à mourir : l’apport unique du travail social
    Intervention January 2023 DOI: 10.7202/1097409ar
  10. Cherblanc, J., Côté, I., Cadell, S., Verdon, C., Grenier, J., Simard, C., … & Bergeron-Leclerc, C. (2023). L’aide médicale à mourir at-elle protégé la santé mentale des personnes endeuillées pendant la pandémie de COVID-19?. Intervention, (156), 39-54.
  11. Christie, Timothy, and Madeline Li. “Medically assisted dying in Canada and unjust social conditions: a response to Wiebe and Mullin.” Journal of Medical Ethics (2023).
  12. Close E, Downie J, White BP. Practitioners’ experiences with 2021 amendments to Canada’s medical assistance in dying law: a qualitative analysis. Palliat Care Soc Pract. 2023 Dec 25;17:26323524231218282. doi: 10.1177/26323524231218282. PMID: 38148894; PMCID: PMC10750527.
  13. Coelho, R., Maher, J., Gaind, K. S., & Lemmens, T. (2023). The realities of Medical Assistance in Dying in Canada. Palliative & Supportive Care, 1-8.
  14. Crnich-Côté, Thania & Allard, Emilie & Marcoux, Isabelle. (2023). Deuil et aide médicale à mourir : exploration narrative de l’expérience d’enfants d’âge adulteBereavement and Medical Aid in Dying: A Narrative Exploration of the Experience of Adult ChildrenDuelo y ayuda médica al morir: exploración narrativa de la experiencia de hijos adultos que han perdido a su madre o a su padre. Frontières. 34. 10.7202/1107627ar.
  15. Daniel Rosenbaum, Matthew Cho, Evan Schneider, Sarah Hales & Daniel Z. Buchman (2023)Ethical Considerations at the Intersection Between Psychedelic-Assisted Psychotherapy and Medical Assistance in Dying, AJOB Neuroscience, 14:2, 139-141, DOI: 10.1080/21507740.2023.2188297
  16. dhungel, R., & Webster, B. . (2023). A Critical Review A Critical Review: Medical Assistance in Dying Policy in Canada. Mind and Society, 12(01), 27–32. https://doi.org/10.56011/mind-mri-121-20233
  17. Disha, K., Bianchi, A., Shanker, R., & Lukich, N. (2023). Where Do I Go to Wait? Ethical Considerations During the 90 Day Reflection Period for MAiD. Canadian Journal of Bioethics, 6(1), 70-74.
  18. Downar, J., MacDonald, S., & Buchman, S. (2023). Medical Assistance in Dying and Palliative Care: Shared Trajectories. Journal of Palliative Medicine, 26(7), 896-899.
  19. Frolic, A. (2023, May). Leader as CARER: An ecological approach to designing a resilient MAiD program. In Healthcare Management Forum (Vol. 36, No. 3, pp. 137-141). Sage CA: Los Angeles, CA: SAGE Publications.
  20. Gagné, M.-A. (2023). Aide médicale à mourir et troubles mentaux : exploration des défis, des préoccupations et des enjeux éthiques associés / Medical Assistance in Dying and Mental Disorders: Exploring the Challenges, Concerns and Ethical Issues Involved. Canadian Journal of Bioethics / Revue canadienne de bioéthique, 6(3-4), 1–7. 10.7202/1107999ar
  21. Gagné, M. A. (2023). Factors influencing the involvement of health care professionals in the administration of medical aid in dying in Quebec. Ethics, Medicine and Public Health, 29, 100911.
  22. Gerson, S. M., Gamondi, C., Wiebe, E., & Deliens, L. (2023). Should palliative care teams be involved in medical assisted dying? Journal of Pain and Symptom Management. https://doi.org/10.1016/j.jpainsymman.2023.04.004
  23. Gina Bravo, Nathalie Delli Colli, Isabelle Dumont, Lise Trottier
    Social workers’ experiences with medical assistance in dying: Survey findings from Quebec, Canada May 2023 Social Work in Health Care DOI:10.1080/00981389.2023.2210624
  24. Glinka, J., Sachar, Y., Tang, E., Brahmania, M., Hwang, J., Waugh, E., … & Skaro, A. (2023). Liver transplantation with donation after medical assistance in dying: case series and systematic review of the literature. Liver Transplantation, 29(6), 618-625.
  25. Grogan, C. N. (2023). Regulation of Belief-Based Care Denial in Canada. Policy Commons.
  26. Hemsworth, A. (2023). Professional Quality of Life, Moral Distress, and Turnover Intent of Healthcare Providers Working within the Context of Medical Assistance in Dying (Doctoral dissertation, Université d’Ottawa/University of Ottawa).
  27. Isabelle Dumont Étude exploratoire sur l’expérience de familles dont un membre est décédé en contexte d’aide médicale à mourir au Québec. Intervention. Online publication: March 10, 2023
    URI:https://id.erudit.org/iderudit/1097404ar
    DOI: https://doi.org/10.7202/1097404arCopiedAn error has occurred
  28. Jacques Cherblanc, Isabelle Côté, Susan Cadell, Christiane Bergeron-Leclerc. L’aide médicale à mourir a-t-elle protégé la santé mentale des personnes endeuillées pendant la pandémie de COVID-19 ? Interventions January 2023 DOI: 10.7202/1097405ar
  29. Karine Légère, Shelley Doucet, Alison Luke, Alex Goudreau. Barriers and facilitators to engaging in the practice of medical assistance in dying among providers in Canada: a scoping review protocol. February 2023JBI Evidence Synthesis Publish Ahead of Print(7)DOI: 10.11124/JBIES-22-00278
  30. Knox, M., & Wagg, A. (2023). Contemplating the Impacts of Canadian Healthcare Institutions That Refuse to Provide Medical Assistance in Dying: A Framework-Based Discussion of Potential Health Access Implications. American Journal of Hospice and Palliative Medicine®, 10499091231155854.
  31. Lamothe, Geneviève & Soulières, Maryse. (2023). Quand l’aide médicale à mourir s’invite en fin de vie : une recherche qualitative sur la perspective des prochesWhen Medical Aid in Dying Comes at the End of Life: A Qualitative Research on Relatives’ PerspectiveCuando la ayuda médica para morir llega al final de la vida: investigación cualitativa sobre la perspectiva de los seres queridos. Frontières. 34. 10.7202/1107626ar.
  32. Laperle, P. (2023). Regard sur les expériences de deuil de proches ayant perdu un être cher par aide médicale à mourir ou par mort naturelle accompagnée de soins palliatifs. [Doctoral dissertation, Université de Montréal]. https://papyrus.bib.umontreal.ca/xmlui/handle/1866/27833
  33. Lazin, S. J., & Chandler, J. A. (2023). Two Views of Vulnerability in the Evolution of Canada’s Medical Assistance in Dying Law. Cambridge Quarterly of Healthcare Ethics, 32(1), 105-117.
  34. Lees, C., & Andrew, M. K. (2023, May). MAiD for geriatric syndromes: Special considerations. In Healthcare Management Forum (Vol. 36, No. 3, pp. 162-165). Sage CA: Los Angeles, CA: SAGE Publications.
  35. Liu, K., Siedlikowski, S., Mellett, J., Carnevale, F. A., & Macdonald, M. E. (2023). Young people’s perspectives on assisted dying and its potential inclusion of minors. Children & Society.
  36. Mills, A., Nolen, A., Qureshi, F., & Selby, D. (2023). Use of palliative sedation following Medical Assistance in Dying (MAiD) legislation: A mixed-methods study of palliative care providers. Palliative & Supportive Care, 1-8.
  37. Parks, J. A. (2023). Feminist Approaches to Medical Aid in Dying: Identifying a Path Forward. In New Directions in the Ethics of Assisted Suicide and Euthanasia (pp. 243-262). Cham: Springer International Publishing.
  38. Perron, C., Bouthillier, M. E., & Racine, E. (2023, May). Support structures for healthcare professionals involved in medical assistance in dying: Quebec, Canada, and the international landscape. In Healthcare Management Forum(Vol. 36, No. 3, pp. 142-148). Sage CA: Los Angeles, CA: SAGE Publications.
  39. Perron, C., & Finley-Roy, V. (2023). Intégration des personnes atteintes de troubles neurocognitifs dans la recherche sur l’aide médicale à mourir: l’apport unique du travail social. Intervention, (156), 97-107.
  40. Pesut, B., & Thorne, S. (2023). Reflections on the relational ontology of medical assistance in dying. Nursing Philosophy, e12438.
  41. Pesut, B., Thorne, S., Puurveen, G., & Leimbigler, B. (2023). Supporting nursing roles in medical assistance in dying: Development and evaluation of an evidence-based reflective guide. PEC Innovation, 3. https://www.sciencedirect.com/science/article/pii/S2772628223001140
  42. Pittman, G., Morrell, S., Ziegler, E., McEwen, A., Rickeard, D., Bornais, J., … & Jacobs, L. (2023). Education Regarding Opioid Prescribing, Opioid Tapering, and Medical Assistance in Dying (MAiD) for Nurse Practitioner Students Using Virtual Simulation Games: A Pilot Study. Clinical Simulation in Nursing, 80, 23-30.
  43. Pullman, D. (2023). Slowing the Slide Down the Slippery Slope of Medical Assistance in Dying: Mutual Learnings for Canada and the US. The American Journal of Bioethics, 1-9.
  44. Rivest, J., Rouly, G., Brouillette, M. J., Nguyen, O., & Desbeaumes Jodoin, V. (2023). Improving Palliative Care and Medical Assistance in Dying Practice in Canada: How Patients-Partners Could Contribute to Continuing Medical Education. Palliative Medicine Reports, 4(1), 116-119.
  45. Robyn Thomas, Barbara Pesut, Gloria Puurveen, Betsy Leimbigler
    Medical Assistance in Dying: A Review of Canadian Health Authority Policy Documents May 2023 Global Qualitative Nursing Research 10(1):233339362311673 DOI: 10.1177/23333936231167309
  46. Rosanne Beuthin & Anne Bruce (2023) MAiD as human connection: Stories and metaphors of physician providers’ existential lived experience, Death Studies, DOI: 10.1080/07481187.2023.2293717
  47. Self, G. (2023, May). Lessons learned about MAiD from a Catholic healthcare perspective. In Healthcare Management Forum (Vol. 36, No. 3, pp. 154-161). Sage CA: Los Angeles, CA: SAGE Publications.
  48. Selby, D., Wortzman, R., Bean, S., & Mills, A. (2023). Perception of roles across the interprofessional team for delivery of medical assistance in dying. Journal of Interprofessional Care, 37(1), 39–46. https://doi.org/10.1080/13561820.2021.1997947
  49. Serota, K., Atkinson, M., & Buchman, D. Z. (2023). Unacknowledged pain and disenfranchised grief: A narrative analysis of physical and emotional pain in complex MAiD bereavement stories. Canadian Journal of Pain, 2231046.
  50. Serota, Kristie & Buchman, Daniel & Atkinson, Michael. (2023). Mapping MAiD Discordance: A Qualitative Analysis of the Factors Complicating MAiD Bereavement in Canada. Qualitative Health Research. 34. 10.1177/10497323231208540.
  51. Silva, V. S. E., Silva, A. R., Rochon, A., Lotherington, K., Hornby, L., Wind, T., … & Dhanani, S. (2023). Organ Donation Following Medical Assistance in Dying Series: A Scoping Review-Part 1-legal and ethical aspects. JBI Evidence Synthesis, 10-11124.
  52. Silva, V. S. E., Silva, A., Rochon, A., Lotherington, K., Hornby, L., Wind, T., … & Dhanani, S. (2023). Outcomes from organ donation following medical assistance in dying: a scoping review. Transplantation Reviews, 37(1), 100748.
  53. Simpson, A. I., Tran, J., & Jones, R. M. (2023). Ethical considerations regarding mental disorder and medical assistance in dying (MAiD) in the prison population. Medicine, Science and the Law, 63(1), 3-5.
  54. Tapp, D., Plaisance, A., Boudreault, N., St-Pierre, I., Desbiens, J. F., Poitras, S. C., … & Bravo, G. (2023). Development of a bilingual interdisciplinary scale assessing self-efficacy for participating in Medical Assistance in Dying. Canadian Medical Education Journal.
  55. Tong, E., Nissim, R., Selby, D., Bean, S., Isenberg-Grzeda, E., Thangarasa, T., … & Hales, S. (2023). The impact of COVID-19 on the experiences of patients and their family caregivers with medical assistance in dying in hospital. BMC Palliative Care, 22(1), 1-8.
  56. Trouton, K. (2024, July/August). Integration of medical assistance in dying into family practice. Canadian Family Physician. DOI: https://doi.org/10.46747/cfp.700708512
  57. Variath, C. (2023). Loss of Capacity to Consent and Access to Medical Assistance in Dying: Healthcare Providers’ Experiences and Perspectives. [Doctoral dissertation, University of Toronto]. https://hdl.handle.net/1807/128089
  58. Variath C, Climans SA, Edelstein K, Bell JAH. Neuro-oncology clinicians’ perspectives on factors affecting brain cancer patients’ access to medical assistance in dying: A qualitative study. Death Stud. 2023;47(3):296-306. PMID: 35442866.
  59. Wasylenko, E. (2023, May). Harmonizing conscience claims and patient access to assisted death. In Healthcare Management Forum (Vol. 36, No. 3, pp. 176-179). Sage CA: Los Angeles, CA: SAGE Publications.
  60. Wiebe, E., & Kelly, M. (2023). Medical assistance in dying when natural death is not reasonably foreseeable. Canadian Family Physician, 69(12), 853-858. 10.46747/cfp.6912853
  61. Wiebe, K., & Mullin, A. (2023). Choosing death in unjust conditions: hope, autonomy and harm reduction. Journal of Medical Ethics.
  62. Wiebe, K., Wilson, L. C., Lotherington, K., Mills, C., Shemie, S. D., & Downar, J. (2023). Deceased organ and tissue donation after medical assistance in dying: 2023 updated guidance for policy. CMAJ, 195(25), E870-E878.

2022

  1. Allatt, P., Kim, D. D., & Hébert, P. (2022). Voluntary stopping of eating and drinking in the age of medical assistance in dying: ethical considerations for physicians. Palliative Care and Social Practice, 16, 26323524221112170.
  2. Andersen SK, Mellett J, Rashid M, Stewart S, Leier B, Townsend DR, Garros D.Has medical assistance in dying changed end-of-life care in the ICU? A qualitative survey of Canadian intensivists. J Crit Care. 2022 Dec;72:154136. PMID: 36030677.
  3. Andrea Frolic3, Marilyn Swinton, Allyson Oliphant, Leslie Murray, Paul Miller. Access Isn’t Enough: Evaluating the Quality of a Hospital Medical Assistance in Dying Program. August 2022 HEC Forum DOI: 10.1007/s10730-022-09486-8
  4. Bahji A, Delva N. Making a case for the inclusion of refractory and severe mental illness as a sole criterion for Canadians requesting medical assistance in dying (MAiD): a review. J Med Ethics. 2022 Nov;48(11):929-34. PMID: 33849958.
  5. Bérubé, A., Tapp, D., Dupéré, S., Plaisance, A., Bravo, G., Downar, J., & Couture, V. (2022). Do Socioeconomic Factors Influence Knowledge, Attitudes, and Representations of End-of-Life Practices? A Cross-Sectional Study. Journal of Palliative Care, 082585972211316. https://doi.org/10.1177/08258597221131658
  6. Blouin, S., & Pott, M. (2022). Assistance in dying: Conditions for international comparison. Death studies, 46(7), 1541-1546.
  7. Blouin, S., Gerson, S. M., & Cavalli, S. (2022). Assistance in dying across borders: How the transnational circulations of persons, terms and themes influence the construction of a public problem. Death Studies, 46(7), 1557-1568.
  8. Bravo, G., Trottier, L., & Arcand, M. (2022). Physicians’ characteristics and attitudes towards medically assisted dying for non-competent patients with dementia. Canadian Journal on Aging, 41(1), 135-142. https://doi.org/doi:10.1017/S0714980821000088
  9. Bravo, G., Delli-Colli, N., Dumont, I., Bouthillier, M. E., Rochette, M., & Trottier, L. (2022). Social workers’ attitudes toward medical assistance in dying for persons with dementia: Findings from a survey conducted in Quebec, Canada. Journal of Social Work in End-of-Life & Palliative Care, 18(3), 273-292
  10. Bravo, G., Van den Block, L., Downie, J., Arcand, M., Kaasalainen, S., Pautex, S., & Trottier, L. (2022). Informal care-givers’ attitudes towards medical assistance in dying for persons with dementia. Ageing and Society, 1–27. https://doi.org/10.1017/s0144686x22001234
  11. Buote, L. C., Wada, K., Russell-Mayhew, S., & Feldstain, A. (2022). Maid in Canada: Controversies, guidelines, and the role of psychologists in relation to Bill C-14. Canadian Psychology / Psychologie canadienne, 63(1), 126–137. https://doi.org/10.1037/cap0000286
  12. Cheng, E. Y. Q., Mah, K., Al-Awamer, A., Pope, A., Swami, N., Wong, J. L., Mathews, J., Howell, D., Hannon, B., Rodin, G., Shapiro, G. K., Li, M., Le, L. W., & Zimmermann, C. (in press). Overlap of Public Interest in Medical Assistance in Dying and Palliative Care. BMJ Supportive and Palliative Care.
  13. Coelho, R., Gaind, K. S., Lemmens, T., & Maher, J. (2022). Normalizing Death as. Canada: Whose Suicides do we Prevent, and whose do we Abet, 27-35.
  14. Courtney, K. L., Beuthin, R., & Bliss, G. (2022). Exploring Population Age as a Utilization Variable in Medical Assistance in Dying in British Columbia, Canada. International Journal of Nursing and Health Science, 8(3), 14–18. https://doi.org/10.14445/24547484/ijnhs-v8i3p103
  15. Daneault, S., Azri, M., Ummel, D., Vinit, F., Côté, A., Leclerc-Loiselle, J., Laperle, P., & Gendron, S. (2022, March 2). Non-somatic Suffering in Palliative Care: A Qualitative Study on Patients’ Perspectives. Journal of Palliative Care, 37(4), 518–525. https://doi.org/10.1177/08258597221083421
  16. de Silva, V. S., Ross-White, A., Hornby, L., Lotherington, K., Silva, A., Rochon, A., … & Dhanani, S. (2022). Organ donation after medical assistance in dying: a scoping review protocol. JBI Evidence Synthesis, 20(4), 1127-1134.
  17. Dholakia SY, Bagheri A, Simpson A. Emotional impact on healthcare providers involved in medical assistance in dying (MAiD): a systematic review and qualitative meta-synthesis. BMJ Open 2022;12:e058523. doi:10.1136/bmjopen-2021-058523
  18. Dorji, N., Lapierre, S., & Dransart, D. A. C. (2022). Perception of medical assistance in dying among Asian Buddhists living in Montreal, Canada. OMEGA-Journal of Death and Dying, 85(3), 579-603.
  19. Downie, J. (2022). From Prohibition to Permission: the Winding Road of Medical Assistance in Dying in Canada. HEC-Forum. https://doi.org/10.1007/s10730-022-09488-6
  20. Drew, C. (2022). Canadian nursing students’ understanding, and comfort levels related to Medical Assistance in Dying. Quality Advancement in Nursing Education-Avancées en formation infirmière, 8(2), 9.
  21. Driftmier, P., & Shaw, J. (2022). Understanding the Policy Landscape Surrounding Medical Assistance in Dying in Canada’s Federal Prison System. Journal of Correctional Health Care, 28(2), 75-79.
  22. Ellen R. Wiebe, Michaela Kelly, Laura Spiegel, Jean-Frederic Menard, Emily Hawse & Rebecca Dickinson (2022) Are unmet needs driving requests for Medical Assistance in Dying (MAiD)? A qualitative study of Canadian MAiD providers, Death Studies, DOI: 10.1080/07481187.2022.2042754
  23. Engelhart, S., Stall, N. M., & Quinn, K. L. (2022). Considerations for assessing frail older adults requesting medical assistance in dying. CMAJ, 194(2), E51-E53.
  24. Freeland, A., Godkin, D., Dembo, J., Chan, P., Knoops, F., Lachmann, M., … & Charbonneau, M. (2022). Medical assistance in dying (maid) for persons whose sole underlying medical condition is a mental disorder: challenges and considerations. The Canadian Journal of Psychiatry, 67(1), 71-87.
  25. Frolic, A., & Miller, P. (2022, August 24). Implementation of Medical Assistance in Dying as Organizational Ethics Challenge: A Method of Engagement for Building Trust, Keeping Peace and Transforming Practice. HEC Forum. https://doi.org/10.1007/s10730-022-09485-9
  26. Frolic, A., Miller, P., Harper, W., & Oliphant, A. (2022a, September 12). MAiD to Last: Creating a Care Ecology for Sustainable Medical Assistance in Dying Services. HEC Forum. https://doi.org/10.1007/s10730-022-09487-7
  27. Frolic, A., Murray, L., Swinton, M., & Miller, P. (2022, August 23). Getting Beyond Pros and Cons: Results of a Stakeholder Needs Assessment on Physician Assisted Dying in the Hospital Setting. HEC Forum. https://doi.org/10.1007/s10730-022-09492-w
  28. Frolic, A., & Oliphant, A. (2022, September 2). Introducing Medical Assistance in Dying in Canada: Lessons on Pragmatic Ethics and the Implementation of a Morally Contested Practice. HEC Forum. https://doi.org/10.1007/s10730-022-09495-7
  29. Frolic, A., Swinton, M., Oliphant, A., Murray, L., & Miller, P. (2022, August 26). Access Isn’t Enough: Evaluating the Quality of a Hospital Medical Assistance in Dying Program. HEC Forum. https://doi.org/10.1007/s10730-022-09486-8
  30. Gupta M, Blouin S. Ethical judgment in assessing requests for medical assistance in dying in Canada and Quebec: What can we learn from other jurisdictions? Death Stud. 2022;46(7):1608-1620. doi: 10.1080/07481187.2021.1926636. Epub 2021 Jun 7. PMID: 34097584.
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2021

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  41. Stukalin I, Olaiya OR, Naik V, Wiebe E, Kekewich M et al. Medications and Doses used in Medical Assistance in Dying (MAiD): A Retrospective Cohort Study” 2021 Can Med Assos J Open 0268.R2
  42. Thangarasa, T., Hales, S., Tong, E. et al. A Race to the End: Family Caregivers’ Experience of Medical Assistance in Dying (MAiD)—a Qualitative Study. J GEN INTERN MED (2021). https://doi.org/10.1007/s11606-021-07012-z
  43. Thériault, V., Guay, D. & Bravo, G. (2021). Extending Medical Aid in Dying to Incompetent Patients: A Qualitative Descriptive Study of the Attitudes of People
    Living with Alzheimer’s Disease in Quebec. Canadian Journal of Bioethics /Revue canadienne de bioéthique, 4(2), 69–77. https://doi.org/10.7202/1084452ar
  44. Ward V, Freeman S, Banner D. Care Provider Perspectives of Medical Assistance in Dying in a Canadian Hospice That Does Not Provide Medical Assistance in Dying Jan 2021 · Canadian Journal of Nursing Research
  45. Wiebe E, Kelly M. Community characteristics and MAiD uptake in Ontario: an ecological study Canadian Health Policy, August 2021. ISSN 2562-9492
  46. Wiebe E, Kelly M, Lalonde K. Oversight of Medical Assistance in Dying (MAiD) in Canada: A Mixed-Methods Report of What We Have and What We Should Have. Canadian Health Policy, August 2021. ISSN 2562-9492
  47. Wiebe, E., Kelly, M., McMorrow, T., Tremblay-Huet, S., & Hennawy, M. (2021). Assessment of capacity to give informed consent for medical assistance in dying: A qualitative study of clinicians’ experience. Canadian Medical Association Open Access Journal, 9(2), E358-E363. https://doi.org/10.9778/cmajo.20200136
  48. Wiebe ER, Kelly M, McMorrow T, Trembey-Huet S, Hennawy M. How the experience of medical assistance in dying changed during the COVID-19 pandemic in Canada: a qualitative study of providers. April 2021CMAJ Open 9(2):E400-E405 DOI: 10.9778/cmajo.20200163
  49. Wiebe E, Sum B, Kelly M, Hennawy M. Forced and chosen transfers for medical assistance in dying (MAiD) before and during the COVID 19 pandemic: a mixed methods study. Death Studies 2021 (in press)
  50. Winters, J. P., Pickering, N., & Jaye, C. (2021). Because it was new: Unexpected experiences of physician providers during Canada’s early years of legal medical assistance in dying. Health Policy, 125(11), 1489-1497. https://doi.org/10.1016/j.healthpol.2021.09.012
  51. Wright D. “Reflection and soul searching”: Negotiating nursing identity at the fault lines of palliative care and medical assistance in dying. Social science & medicine 2021:114366

2020

  1. Ball, I. M., Healey, A., Keenan, S., Priestap, F., Basmaji, J., Honarmand, K., … & Weiss, M. (2020). Organ donation after medical assistance in dying—Canada’s first cases. New England Journal of Medicine, 382(6), 576-577.
  2. Ball, I. M., Martin, C., & Sibbald, R. (2020). Potassium chloride for medical assistance in dying followed by organ donation. Canadian Journal of Anesthesia/Journal Canadien D’anesthésie, 67, 905-906.
  3. Beuthin R, Bruce A, Hopwood MC,Robertson WD, Bertoni K. Rediscovering the art of medicine, rewards, and risks: Physicians’ experience of providing medical assistance in dying in Canada. 2020 SAGE Open Medicine Volume 8: 1–9 DOI: 10.1177/2050312120913452
  4. Black, S., Bartel, L., & Rodin, G. (2020). Exit music: The experience of music therapy within medical assistance in dying. Healthcare 8(3), 331. https://doi.org/10.3390/healthcare8030331
  5. Brown, J., Goodridge, D., Harrison, A., Kemp, J., Thorpe, L., & Weiler, R. (2020). Medical assistance in dying: Patients’, families’, and health care providers’ perspectives on access and care delivery. Journal of Palliative Medicine, 23(11), 1468-1477. https://doi.org/10.1089/jpm.2019.0509
  6. Brown J, Goodridge D, Harrison A, Thorpe L, Kemp J, Weiler R. Care Considerations in a Patient- and Family-Centered Medical Assistance in Dying Program
    August 2020 Journal of palliative care DOI: 10.1177/0825859720951661
  7. Brown, J. Goodridge, D., & Thorpe, L. (2020). Medical assistance in dying in health sciences curricula: A qualitative exploratory study. Canadian Medical Education Journal. DOI: 10.36834/cmej.69325
  8. Casey, G. M., Kekewich, M., Naik, V. N., Hartwick, M., & Healey, A. (2020). A request for directed organ donation in medical assistance in dying (MAID). Canadian Journal of Anesthesia/Journal Canadien D’anesthésie, 67, 806-809.
  9. Donna E. Stewart, Pierre Viens, Oviya Muralidharan, Patti Kastanias, Justine Dembo, and Ekaterina Riazantseva.E-Survey of Stressors and Protective Factors
    in Practicing Medical Assistance in Dying. Journal of Palliative Medicine.ahead of printhttp://doi.org/10.1089/jpm.2020.0664
  10. Downer J, et al. Early experience with medical assistance in dying in Ontario, Canada: A cohort study,’ Canadian Medical Association Journal, published online 11 February 2020.
  11. Durant K-L, Kortes-Miller K. Physician snapshot: the forming landscape of MAiD in northwestern Ontario. Palliative Care and Social Practice. January 2020. doi:10.1177/2632352420932927
  12. Freeman LA, Pfaff KA, Kopchek L, Liebman J. Investigating palliative care nurse attitudes towards medical assistance in dying: An exploratory cross-sectional study. Journal of Advanced Nursing. 2020 Feb;76(2):535-545. DOI: 10.1111/jan.14252.
  13. Frolic A, Swinton M, Murray L, Oliphant A. Double-edged MAiD death family legacy: a qualitative descriptive study. December 2020Supportive and Palliative Care Follow journal
    DOI: 10.1136/bmjspcare-2020-002648
  14. Gerson S. Assisted dying and palliative care in three jurisdictions: Flanders, Oregon, and Quebec. Annals of palliative medicine 12/04/2020.
  15. Gewarges, M., Gencher, J., Rodin, G., & Abdullah, N. (2020). Medical assistance in dying: A point of care educational framework for attending physicians. Teaching and Learning in Medicine, 32(2), 231-237. https://doi.org/10.1080/10401334.2019.1682588
  16. Isenberg-Grzeda E, Bean S, Cohen C, Selby D. Suicide Attempt After Determination of Ineligibility for Assisted Death: A Case Series J Pain Symptom Manage 2020;60:158e163
  17. Koksvik G. Practical and ethical complexities of MAiD: Examples from Quebec. November 2020 Wellcome Open Research 5:227 DOI: 10.12688/wellcomeopenres.16306.2
  18. Leck E, Christie S, Barry T, Barry S. The preliminary opinion of Canadian spine surgeons on Medical Assistance in Dying (MAID); a cross-sectional survey of Canadian Spine Society (CSS) members Dec 2020 · North American Spine Society Journal (NASSJ)
  19. Lees C, Gubitz G, Horton R. A Retrospective Review of Medically Assisted Deaths in Nova Scotia: What Do We Know and Where Should We Go? J Palliative Medicine. http://doi.org/10.1089/jpm.2020.0512
  20. Mills A, Wortzman R, Bean S, Selby D.Allied Health Care Providers Participating in Medical Assistance in Dying: Perceptions of Support. J Hosp Palliat Nurs. 2020 Jun;22(3):220-8. PMID: 32282557.
  21. Munro C, Romanova A, Webber C, Kekewich M, Richard R, Tanuseputro P. Involvement of palliative care in patients requesting medical assistance in dying.
    Canadian Family Physician November 2020, 66 (11) 833-842;
  22. Oczkowski SJW, Crawshaw D, Austin P, Frolic A et al. How we can improve the quality of care for patients requesting medical assistance in dying: a qualitative study of health care providers August 2020Journal of Pain and Symptom Management
  23. Pesut, B., Thorne, S., Schiller, C., Greig, M., Roussel, J., Tishelman, C. (2020). Constructing good nursing practice for Medical Assistance in Dying in Canada: An Interpretive Descriptive study. Global Qualitative Nursing Research, 7, 1-11 https://journals.sagepub.com/doi/full/10.1177/2333393620938686
  24. Pesut, B., Thorne, S., Storch, J., Chambaere, K., Greig, M., Burgess, M. (2020) Riding an elephant. A qualitative study of nurses’ moral journeys in the context of Medical Assistance in Dying (MAiD). Journal of Clinical Nursing, 29(19-20) 3870-3881. http://dx.doi.org/10.1111/jocn.15427
  25. Pesut, B., Thorne, S., Schiller, C., Greig, M., Roussel, J. (2020). The rocks and hard places of MAiD: A qualitative study of nursing practice in the context of legislated assisted death. BMC Nursing. Published online February 17, 2020. https://bmcnurs.biomedcentral.com/articles/10.1186/s12912-020-0404-5
  26. Praslickova Z, Kelly M, Wiebe E. (2020) The experience of volunteer witnesses for Medical Assistance in Dying (MAiD) requests, Death Studies, DOI: 10.1080/07481187.2020.1716884
  27. Redelmeier, D.A., Detsky, A.S. Economic Theory and Medical Assistance in Dying. Appl Health Econ Health Policy (2020). https://doi.org/10.1007/s40258-020-00587-4
  28. Sabrina Tremblay-Huet, Thomas McMorrow, Ellen Wiebe, Michaela Kelly, Mirna Hennawy, Brian Sum, The impact of the COVID-19 pandemic on medical assistance in dying in Canada and the relationship of public health laws to private understandings of the legal order, Journal of Law and the Biosciences, Volume 7, Issue 1, January-June 2020, lsaa087, https://doi.org/10.1093/jlb/lsaa087
  29. Selby DA-OhooX, Bean S, Isenberg-Grzeda E, Bioethics BHD, Nolen A.Medical Assistance in Dying (MAiD): A Descriptive Study From a Canadian Tertiary Care Hospital. Am J Hosp Palliat Care. 2020 Jan;37(1):58-64.AccessionNum: 31256607.
  30. Selby D, Meaney C, Bean S, Isenberg-Grzeda E. Factors predicting the risk of loss of decisional capacity for medical assistance in dying: a retrospective database review
    Citing article Oct 2020 · CMAJ Open
  31. Sofronas, M., Wright , D. K., & Hudson, H. Supporting ethical ICU nursing practice in organ donation: An analysis of personhood. The Canadian Journal of Critical Care Nursing (2002) DOI: 10.5737/236888653-3211826  
  32. Thomas McMorrow, Ellen Wiebe, Ruchi Liyanage, Sabrina Tremblay-Huet & Michaela Kelly “Interpreting Eligibility Under the Medical Assistance in Dying Law: The Experiences of Physicians and Nurse Practitioners” 14:1 McGill JL & Health 51. (2020) DOI: 10.5737/236888653-3211826 
  33. Trouton K., Beuthin, R., Thompson, M., Bruce, A., Lemire-Elmore, C., Zhang, A., & Daudt, H. Attitudes and expectations regarding bereavement support for patients, family members, and friends: Findings from a survey of MAID provider. BC Med J, vol. 62 , No. 1 , January February2020 , Pages 18-23
  34. Ummel D. De l’importance du sens donné à la mort assistée : l’accompagnement de fin de vie et le processus de deuil en contexte d’aide médicale à mourir
    October 2020Frontières 32(1) DOI: 10.7202/1072754ar
  35. Variath C, Peter E, Cranley L, Godkin D, Just D. Relational influences on experiences with assisted dying: A scoping review May 2020 Nursing Ethics DOI: 10.1177/0969733020921493
  36. Wiebe ER, Green S, Wiebe K. Medical assistance in dying (MAiD) in Canada: practical aspects for healthcare teams. July 2020 Annals of Palliative Medicine 9(6):38-38. DOI: 10.21037/apm-19-631
  37. Zworth M, Saleh C, Ball I, Kalles G, Chkaroubo A, Kekewich M, Miller PQ, Dees M, Frolic A, Oczkowski S. Provision of medical assistance in dying: a scoping review. BMJ Open. 2020 Jul 8;10(7):e036054. PMID: 32641328.

2019

  1. Antifaeff K. Social Work Practice with Medical Assistance in Dying: A Case Study. 2019 Nat Assoc Soc Workers doi:10.1093/hsw/hlz002
  2. Banner, D., Schiller, C. J., & Freeman, S. (2019). Medical assistance in dying: A political issue for nurses and nursing in Canada. Nursing Philosophy, 20(4), Article e12281. https://doi.org/10.1111/nup.12281
  3. Belanger E, Towers A, Wright DK, Chen Y, Tradounsky G, Macdonald ME.Of dilemmas and tensions: a qualitative study of palliative care physicians’ positions regarding voluntary active euthanasia in Quebec, Canada. J Med Ethics. 2019 Jan;45(1):48-53.AccessionNum: 30377217.
  4. Beuthin, R. & Bruce, A. (2019). Medical assistance in dying (MAiD): Ten Things Leaders Need to Know. Canadian Journal of Nursing Leadership, 31(4), 74-81.
  5. Bouthillier ME, Opatrny L. A qualitative study of physicians’ conscientious objections to medical aid in dying.Palliat Med. 2019 Oct;33(9):1212-20. PMID: 31280666.
  6. Bravo GA-O, Trottier L, Rodrigue C, Arcand M, Downie J, Dubois MF, Kaasalainen S, Hertogh CM, Pautex S, Van den Block L. Comparing the attitudes of four groups of stakeholders from Quebec, Canada, toward extending medical aid in dying to incompetent patients with dementia. Int J Geriatr Psychiatry. 2019 Jul;34(7):1078-86.PMID: 31034669.
  7. Brooks L. Health Care Provider Experiences of and Perspectives on Medical Assistance in Dying: A Scoping Review of Qualitative Studies. Can J Aging. 2019 Sep;38(3):384-96. PMID: 30626453. Link to full text: https://www.cpsbc.ca/proxyauth/?url=https%3A%2F%2Fpubmed.ncbi.nlm.nih.gov%2F30626453%3Fotool%3Dicacpbclib
  8. Brown J, Thorpe L, Goodridge D. Completion of Medical Certificates of Death after an Assisted Death: An Environmental Scan of Practices. https://www.longwoods.com/content/25685/healthcare-policy/completion-of-medical-certificates-of-death-after-an-assisted-death-an-environmental-scan-of-practice
  9. Bruce, A., & Beuthin, R. (2019). Medically Assisted Dying in Canada: “Beautiful Death” Is Transforming Nurses’ Experiences of Suffering. Canadian Journal of Nursing Research. https://doi.org/10.1177/0844562119856234
  10. Dion S, Wiebe E, Kelly M. Quality of care with telemedicine for medical assistance in dying eligibility assessments: a qualitative study Can Med Assoc J Open 2019 doi: 10.9778/cmajo.20190111 cmajo December 13, 2019 vol. 7 no. 4 E721-E729
  11. Downar, J., Shemie, S. D., Gillrie, C., Fortin, M. C., Appleby, A., Buchman, D. Z., … & Sharpe, M. D. (2019). Deceased organ and tissue donation after medical assistance in dying and other conscious and competent donors: Guidance for policy. CMAJ, 191(22), E604-E613.
  12. Hales BM, Bean S, Isenberg-Grzeda E, Ford B, Selby D.Improving the Medical Assistance in Dying (MAID) process: A qualitative study of family caregiver perspectives. Palliat Support Care. 2019 Oct;17(5):590-5. PMID: 30887936.
    Link to full text: https://www.cpsbc.ca/proxyauth/?url=https%3A%2F%2Fpubmed.ncbi.nlm.nih.gov%2F30887936%3Fotool%3Dicacpbclib
  13. Harty C, Chaput AJ, Trouton K, Buna C, Naik VN. Oral medical assistance in dying (MAiD): informing practiceto enhance utilization in CanadaL’aide me´dicale a`mourir administre´e par voie orale : commente´clairer la pratique pour en ame´liorer son utilisation au Canada Can J Anesth/J Can Anesth (2019) 66:1106–1112 https://doi.org/10.1007/s12630-019-01389-6
  14. Janine Brown, Donna Goodridge, Averi Harrison, Jordan Kemp, Lilian Thorpe, and Robert Weiler. Medical Assistance in Dying: Patients’, Families’, and Health Care Providers’ Perspectives on Access and Care Delivery Journal of Palliative Medicine. ahead of print http://doi.org/10.1089/jpm.2019.0509
  15. Konder RM, Christie T. Medical Assistance in Dying (MAiD) in Canada: A Critical Analysis of the Exclusion of Vulnerable Populations.Healthc Policy. 2019 Nov;15(2):28-38. PMID: 32077843.
  16. McMechan, C., Bruce, A. & Beuthin, R. (2019). Canadian Nursing Students’ Experiences with Medical Assistance in Dying. Quality Advancement in Nursing Education (5),1 (Article 2).DOI: https://doi.org/10.17483/2368-6669.1179
  17. Pesut, B., Greig, M., Thorne, S., Storch, J. Burgess, M., Tishelman, C., Chambaere, K., Janke, R. (2019) Nursing and euthanasia: A narrative review of the nursing ethics literature. Nursing Ethics. Published online May 22, 1-16. Doi:10.1177/0969733019845127.
  18. Pesut, B., Thorne, S., Greig, M., Fulton, A., Janke, R., & Vis-Dunbar, M. (2019) Ethical, policy, and practice implications of nurses’ experiences with assisted death: A synthesis. Advances in Nursing Science, 42(3) 216-230. doi: 10.1097/ANS.0000000000000276.
  19. Pesut, B., Thorne, S., & Greig, M. Shades of grey: Conscientious objection in medical assistance in dying. (2019) Nursing Inquiry Published online July 4, 2019. doi.org/10.1111/nin.12308.
  20. Pesut, B., Thorne, S., Stager, M.L., Schiller, C., Penney, C., Hoffman, C., Greig, M., & Roussel, J. (2019) Medical assistance in dying: A narrative review of Canadian nursing regulatory documents. Policy, Politics and Nursing Practice, Published online May 6, 2019. doi/10.1177/1527154419845407.
  21. Reel K. Denying Assisted Dying Where Death is Not ‘Reasonably Foreseeable’: Intolerable Overgeneralization in Canadian End-of-Life Law. 2019 Canadian Journal of Bioethics
  22. Schiller, C., Pesut, B., Roussel, J., & Greig, M. But it’s legal isn’t it? Law and ethics in nursing practice related to medical assistance in dying. (2019). Nursing Philosophy. Published online August 20, 2019 https://onlinelibrary.wiley.com/doi/epdf/10.1111/nup.12277.[Major] [Impact Factor 1.07]
  23. Selby D, Bean S. Oncologists communicating with patients about assisted dying. Current Opinion in Supportive & Palliative Care. 13(1):59-63, March 2019.
  24. Selby D, Bean S, Isenberg-Grzeda E. Medical Assistance in Dying (MAiD): A Descriptive Study From a Canadian Tertiary Care Hospital American Journal of Hospice and Palliative Medicine 2019 DOI:10.1177/1049909119859844
  25. Shaw, J., Harper, L., Preston, E., Wright, A., Kelly, M., & Wiebe, E. (2019). Perceptions and Experiences of Medical Assistance in Dying Among Illicit Substance Users and People Living in Poverty. OMEGA – Journal of Death and Dying. https://doi.org/10.1177/0030222819889827
  26. Silvius JL, Memon A, Arain M.Medical Assistance in Dying: Alberta Approach and Policy Analysis.Can J Aging. 2019 Sep;38(3):397-406. PMID: 31046853.Link to full text: https://www.cpsbc.ca/proxyauth/?url=https%3A%2F%2Fpubmed.ncbi.nlm.nih.gov%2F31046853%3Fotool%3Dicacpbclib
  27. Suva G, Penney T, McPherson CJ.Medical Assistance in Dying: A Scoping Review to Inform Nurses’ Practice. J Hosp Palliat Nurs. 2019 Feb;21(1):46-53. PMID: 30608357.
  28. Wiebe E, Shaw J, Wright A, Kelly M. Suicide vs Medical Assistance in Dying (MAiD): a secondary qualitative analysis. Death Studies 2019 in press
  29. Wilson DM, Triscott JAC, Cohen J, MacLeod R. Educational needs of healthcare professionals and members of the general public in Alberta Canada, 2 years after the implementation of medical assistance in dying.Health Soc Care Community. 2019 Sep;27(5):1295-302. PMID: 31149763.
  30. Wong A, Hsu AT, Tanuseputro P. Assessing attitudes towards medical assisted dying in Canadian family medicine residents: a cross-sectional study. BMC Med Ethics. 2019 Dec 27;20(1):103. PMID: 31881966.

2018

  1. Beuthin R. Cultivating Compassion: The Practice Experience of a Medical Assistance in Dying Coordinator in Canada Qualitative Health Research 2018, Vol. 28(11) 1679–1691
  2. Beuthin, R & Bruce, A. Medical Assistance in Dying (MAiD): Canadian Nurses’ Experiences. Nurs Forum 2018:1-10
  3. Crumley ET, Sheppard C, Bowden C, Nelson G. Canadian French and English newspapers’ portrayals of physicians’ role and medical assistance in dying (MAiD) from 1972-2016: a qualitative textual analysis. BMJ Open. (accepted 18 Dec 2018)
  4. Elie D, Marino A, Torres-Platas SG, Noohi S, Semeniuk T, Segal M, et al. End-of-Life Care Preferences in Patients with Severe and Persistent Mental Illness and Chronic Medical Conditions: A Comparative Cross-Sectional Study. Am J Geriatr Psychiatry. 2018 Jan;26(1):89-97.
  5. Holmes S, Nuhn A, Kelly M, Shaw J, Just A, Wiebe ER. A Qualitative Study Exploring the Journey of Supporting a Loved One through a Medically-Assisted Death in Canada Can Fam Phys 2018;64(9)e387-93.
  6. Khoshnood N, Hopwood MC, Lokuge B, Kurahashi A, Tobin A, Isenberg S, Husain A. Exploring Canadian Physicians’ Experiences Providing Medical Assistance in Dying: A Qualitative Study. J Pain Symptom Manage. 2018 May 15.
  7. MacDonald S, LeBlanc S, Dalgarno N, Schultz K, Johnston E, Martin M, Zimmerman D. Exploring family medicine preceptor and resident perceptions of medical assistance in dying and desires for education. Can Fam Physician. 2018 Sep;64(9):e400-e6. PMID: 30209114.
  8. Nuhn A, Holmes S, Kelly M, Just A, Shaw J, Wiebe ER. Experiences and perspectives of people who pursued Medical Assistance in Dying (MAiD) in Vancouver, Canada Can Fam Phys 2018;64(9)e380-6.
  9. Robertson WD, Beuthin R. A Review of Medical Assistance in Dying on Vancouver Island July 2016-July 2018 https://www.islandhealth.ca/sites/default/files/2018-10/MAiD-Report-2016-2018.pdf
  10. Shaw J, Wiebe ER, Nuhn A, Holmes S, Kelly M, Just A. Providing Medical Assistance in Dying: Practice Perspectives. Can Fam Phys 2018;64(9)e394-9.
  11. Stewart DE, Rodin G, Li M. Consultation-liaison psychiatry and physician-assisted death. Gen Hosp Psych Vol 55, November–December 2018, Pages 15-19
  12. Verweel L, Rosenberg-Yunger ZRS, Movahedi T, Malek AH. Medical assistance in dying: Examining Canadian pharmacy perspectives using a mixed-methods approach. Can Pharm J (Ott). 2018;151(2):121‐132. Published 2018 Feb 9. doi:10.1177/1715163518754917
  13. Wales J, Isenberg SR, Wegier P, Shapiro J, Cellerius V, Husain A, Khoshnood N. Providing Medical Assistance in Dying within a Home Palliative Care Program in Toronto, Canada: An Observational Study of the First Year of Experience 2018 J Pall Med VOL. 21, NO.11 Published Online: 29 Oct 2018 https://doi.org/10.1089/jpm.2018.0175
  14. Wiebe E, Green S, Schiff B. Teaching residents about medical assistance in dying. Can Fam Physician. 2018 Apr;64(4):315-6.
  15. Wiebe ER, Shaw J, Green S, Trouton K, Kelly M. Reasons for Requesting Medical Assistance in Dying (MAiD) Can Fam Phys 2018;64(9)674-9.
  16. Wright, A. C. & Shaw, J. C. (2018). The spectrum of end of life care: an argument for access to medical assistance in dying for vulnerable populations. Medicine, Health Care and Philosophy, (), 1-9.

2017

  1. Allard J, Fortin MC. Organ donation after medical assistance in dying or cessation of life-sustaining treatment requested by conscious patients: the Canadian context. J Med Ethics. 2017 Sep;43(9):601-605.
  2. Bator EX, Philpott B, Costa AP. This moral coil: a cross-sectional survey of Canadian medical student attitudes toward medical assistance in dying. BMC Med Ethics. 2017 Oct 27;18(1):58,017-0218-5.
  3. Li M, Rodin G. Medical Assistance in Dying. N Engl J Med. 2017 Aug 31;377(9):897-8.
  4. Marrie RA, Salter A, Tyry T, Cutter GR, Cofield S, Fox RJ. High hypothetical interest in physician-assisted death in multiple sclerosis. Neurology. 2017 Apr 18;88(16):1528-34.
  5. Robertson WD, Pewarchuk J, Reggler J, Green S, Daws T, Trouton K. Case Review of Medically Assisted Deaths on Vancouver Island. 2017 BC Med J
  6. Rosso A, Huyer D, Walker A. Analysis of the Medical Assistance In Dying Cases In Ontario: Understanding the Patient Demographics of Case Uptake In Ontario Since the Royal Assent and Amendments of Bill C-14 in Canada. Acad Forensic Pathol. 2017 7(2): 263-287

Grants awarded 2024

KNOWLEDGE TRANSLATION

The Merging of Streams to Improve MAiD Provision: A Case Study of Saskatchewan’s Centralized Approach to Medical Assistance in Dying in Rural Faith-Based Hospitals

Awarded: $2,500

Author: Jade Anderson, Johnson Shoyama Graduate School of Public Policy PhD Candidate

Supervisor: Dr. Amy Zarzeczny, Johnson Shoyama Graduate School of Public Policy Associate Professor

Abstract: As medical assistance in dying (MAiD) becomes increasingly accepted, the policy questions of today are not should MAiD be allowed, but rather how should MAiD be delivered and regulated? The needs of persons who choose to explore MAiD as an end of life option must be balanced with the potential risks to vulnerable patients or those who are morally opposed. This is especially challenging in rural jurisdictions with histories of faith-based hospital care. In western Canada, a model has emerged in which all MAiD activity is centralized within a single provincial program. The purpose of this article is to describe the formation of this provincial MAiD program in Saskatchewan using Kingdon’s (1984) Multiple Stream Model (MSM) and to explore the benefits and challenges of this novel approach to MAiD delivery. Data was extracted from 24 interviews with individuals intimately involved in MAiD and supplemented by a review of select policy documents. Results reveal that federal legalization of MAiD created a policy problem for provincial healthcare systems in Saskatchewan wherein patients were requesting access to legally available care from physicians who felt unsupported and fragmented within a system forced to quickly adapt. Further analysis reveals that policy entrepreneurs within Saskatchewan were successful in coupling this problem with a centralized model that first emerged in Alberta (Silvius et al., 2019). Interviewees credited this model with improved access to MAiD, enhanced quality of care for MAiD patients, greater support for physicians, and a variety of system-level benefits. This model specifically mitigated challenges related to rurality and religiosity such as dual roles, perceived stigma, and conscientious objections. This article adds to the theoretical knowledge of MSM applied to a regional level and informs healthcare policy regarding the delivery of MAiD and other specialized services using a centralized care team.

Planned Knowledge Transfer: We plan to publish this manuscript in an academic journal targeting public policy in Canada such as Canadian Public Administration or Journal of Canadian Public Policy. Knowledge transfer funds would allow for Gold Open Access publication, making the manuscript freely available to the public.

Budget:

Gold Open Access publication: Canadian Public Administration (7,500 words, impact factor: 0.984): $2,630 USD

$3,560 CAN (https://authorservices.wiley.com/author-resources/Journal-Authors/open-access/article-publication-charges.html)

OR Journal of Canadian Public Policy (7,000 words, impact factor: 3.143): $3,000 CAN for Gold Open Access (https://utpjournals.press/about/open-access)

MAiD Family Support Society, “The Many Faces of MAiD

Awarded: $1,300

Abstract of paper: Support for family and friends for Medical Assistance in Dying (MAiD) in Canada is extremely limited, especially for those without access to information or counseling services. Additional barriers include cost, geographic location, and/or fear of stigma. Moreover, grief programs can be hard to access and usually begin only after a death has occurred. The MAiD Family Support Society (MFSS), a volunteer, peer support group, was born from the realization that a peer-to-peer resource did not exist. MFSS volunteers have each had their own unique journey through MAID with a loved one and have come together to be a bridge leading up to MAID and the grief that follows. Since its inception in 2021, MFSS has received 335 requests for support and has experienced a 56% increase since 2022, a trend aligned with Canadians’ request for MAiD.

To expand its reach, MFSS self-published The Many Faces of MAiD – a book that provides companionship during a deeply personal and turbulent time. It offers the perspectives of seventeen storytellers who relay powerful and personal experiences they felt compelled to share so that others on this path know that their raw and often difficult feelings and emotions are not isolated. First published in September 2023, over 500 copies of this book have been sold. To expand its reach, MFSS will use this knowledge transfer grant to conduct outreach to the provincial and territorial hospice and hospice societies that permit MAiD in their care facility and provide 100 copies of this book and information on the MFSS.

Description of planned knowledge transfer (KT): This knowledge transfer (KT) grant aims to distribute MFSS’s self-published English language book titled “The Many Faces of MAiD” to hospice societies and hospices that permit MAiD in their care facility as a resource for families and loved ones.

KT Activity: Self-publish 100 copies of the Many Faces of MAiD and distribute them to 100 hospices and hospice societies.

Target Audience: Hospice societies and hospices who permit MAiD in their care facility; and families and friends whose loved one has been admitted to hospice and has chosen MAiD.

Message: When a loved one chooses MAiD as an end-of-life decision, it can be accompanied by an array of complex emotions – emotions that are a normal part of the journey in grief, in particular, when a loved one opts for MAiD.

KT Output: Increased book distribution of lived experiences of MAiD.

Budget (e.g., receipt of publication fees):

Item:  Publish 100 copies of the book “The Many Faces of MAiD” (English only)

Cost/Item: $7.50

Total: $750.00

Item:  Postage to mail 100 books to hospices and hospice societies

Cost/Item: $5.50

Total: $550.00

TOTAL: $1,300.00

Understanding postgraduate family medicine learner’s perspectives on Medical Assistance in Dying (MAiD) using a constructivist grounded theory approach

Awarded: $2,300

Abstract: According to the College of Family Physicians of Canada (CFPC) Residency Training Profile, graduating family physicians should be able to assess and facilitate patient requests for MAiD However, available research suggests that residents feel significant discomfort with the topic. Conversations addressing MAiD pose complex ethical, emotional, and practical challenges for learners, and a more thorough understanding of their perspectives is essential to guide the integration of curriculum and assessment practices that support competency development. This ongoing qualitative research uses a constructivist grounded theory (CGT) approach in two phases to explore postgraduate family medicine learners’ perspectives and attitudes toward MAiD conversations. In the first phase, we conducted semi-structured interviews of learners recruited from two Ontario medical schools, with questions becoming progressively more purposeful and theoretical as the study progressed. From the preliminary analysis, three distinct learner types that differ in MAiD-related educational needs are beginning to take shape: the action-oriented, compassionate resident-seeking experience, the neutral resident interested in eligibility criteria, and the conscientiously objecting or fearful resident, uncomfortable with the topic. The planned second phase involves pursuing theoretical sampling at a national level. The iterative nature of CGT allows for ongoing discussions, reflections, and modifications of data collection and analysis methods into the second phase. The aim is a comprehensive understanding of learner perspectives along with valuable insights into the MAiD-related educational strategies that may enable graduating family physicians to achieve competence. Although learning objectives, entrustable professional activities (EPAs), and the Canadian Association of MAiD Assessors and Providers (CAMAP) national curriculum for MAiD exist, it is unclear how family medicine residency programs might directly integrate these resources into an educational experience. A thorough understanding of how education is currently provided in the workplace can guide family medicine educators in ensuring educational experiences result in competence.

Budget: The proposed budget for this project is focused on translating the work’s findings to CAMAP and the national MAiD curriculum. The budget includes two knowledge translation efforts, one for an upcoming Curriculum Review Committee meeting and the other for CAMAP’s national meeting. Estimated costs are:

Poster printing for conference presentations and publications: $250

Conference fee: $250

Conference travel: $1,900

TOTAL: $2,400